Laryngectomee Newsletter provides information for laryngectomee and neck breathers how to cope with the corona (COVID-19) pandemic. It advises how to prevent the infection and deal with depression, social isolation, fibrosis, lymphedema, mucous problems, and voice prosthesis leak. It provides suggestions how to deal with esophageal dilation, hospitalization, and keep fit and eat well. Created by Itzhak Brook MD, Professor of Pediatrics at Georgetown University, a physician and a laryngectomee
The Newsletter presents suggestions how laryngectomees can cope with the COVID-19 pandemic.
Dr. Brook is also the creator of the blog" My Voice ".The blog contains information about head and neck cancer, and manuscripts and videos about Dr. Brook's experience as a patient with throat cancer.
Friday, April 24, 2020
Adequate hospital care of laryngectomees
Neck breathers are at a high risk of
receiving inadequate care when hospitalized. The medical staff is often not
aware of their condition, do not know how to care for their airways, and may
not know how to communicate with them.
The COVID-19 pandemic created greater workload
for hospital staff and may make it difficult to pay attention to laryngectomee’s
special needs. Because most hospital limit or prohibit the presence of patients’
companions, making it more difficult for laryngectomees to communicate with the
staff. It is therefore important to take certain steps to ensure that the care
is adequate:
1. Inform the ward’s head nurse and
attending physician about the laryngectomee’s general and specific needs. In
case of elective admission, this can be done prior to the admission to allow
the staff time to get ready and to get adequate supplies and equipment. 2. Inform the ward’s head nurse, attending physician and
anesthetist (when undergoing a procedure with sedation or surgery) about the
proper way of administrating anesthesia, suctioning, ventilating and
intubation. Show them the video in
YouTube: https://goo.gl/UnstchShow them the video in YouTube: https://goo.gl/Unstch (See video below). The video is available in DVD from Atos Medical. The National Patient Safety Project has developed an algorithm for emergency management of patients with laryngectomy.
Rescue breathing for laryngctomees
DVD of Rescue breathing for laryngctomees
3. Inform the dietitian about the food
requirements of the laryngectomee.
4. Inform and, when possible, meet with
the hospital’s speech and language pathologist to ensure adequate care and
availability of adequate supplies.
5. Laryngectomees who experience
swallowing difficulties should request that the orally administered medications
be given in liquid or easy to swallow form.
6. Request specific supplies and
equipment to ensure adequate respiratory care, such as saline bullets,
humidifier, and suction machine.
7. Keep reminding every staff member
caring for the laryngectomee about his or her condition. This can be done by
the patient and/or advocate.
8. Inform the head nurse; attending
physician, and/or patient’s hospital advocate if medical care is not adequate
or if errors are made.
9. Request that signs informing the staff
about the laryngectomee are placed in the patient’s room.
10. Wear the hospital patient ID wristband
on the same hand that identifies them as neck breathers. (See below) Because
staff is required to continuously check the patient ID wristband, they will be
reminded of the condition.
11. Make sure that the laryngectomee is
able to communicate with staff. Those using tracheoesophageal speech may need
to use alternative speech methods such as an electrolarynx and/or communicate
through writing and speech generating devices, i.e., laptop, smartphone, etc.
12. Preparing a kit with essential
information and material when going to the hospital
The kit should contain the following:
An
updated and current summary of the medical and surgical history, allergies and
diagnoses
An
updated list of the medications taken and the results of all procedures,
radiological examinations, scans and laboratory tests. These may be placed on a
disc or USB flash drive
Contact
information and proof of medical insurance
Information
(phone, email, address) of the laryngectomee’s physician(s), speech and
language pathologist, family members and friend(s)
A
figure or drawing of a side view of the neck that explains the anatomy of the
laryngectomee's upper airways and if relevant where the voice prosthesis is
located
A
paper pad and pen
An
electrolarynx with extra batteries (even for those using a voice prosthesis)
A
box of paper tissues
A
supply of saline bullets, HME filters, HME housing, and supplies needed to
apply and remove them (e.g., alcohol, Remove, Skin Tag, glue) and to clean the
voice prosthesis (brush, flushing bulb)
Tweezers,
mirror, flash light (with extra batteries)
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